Rare Disease Day is a movement to bring awareness to rare diseases and work towards equity in social opportunity, health care, and access to diagnoses and treatment for those living with a rare disease.
This year PRRF will celebrate Rare Disease Day by:
Asking our supporters to post a photo of yourself/your family/your colleagues wearing stripes on your social media pages. Don’t forget to share why you support PRRF and use hashtags #PRRF and #RareDiseaseDay
Share your story or make a dedication to someone with a rare retinal disease.
Visit our Facebook page on February 28, 2024 at NOON ET to watch our awareness video celebrating the impact our supporters have made on rare pediatric retinal diseases and learn more about the 7 diseases PRRF serves
CLICK HERE for PRRF’s Facebook PageFor more downloadable tools including filters, frames, virtual backgrounds and more, visit https://www.rarediseaseday.org/downloads/
Download posts to share on your social media using the links below.