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PRRF Family Connection Conference

Register today for PRRF's Annual Family Connection Conference

Saturday, January 20, 2024

10:00 am - 1:30 pm ET.

This year's Family Connection Conference will offer a hybrid experience, featuring both in-person and virtual components. The in-person event will occur at the Oakland Center, located at Oakland University in Rochester, MI, while the virtual component will be conducted through Zoom.

EVENT REGISTRATION IS NOW CLOSED.

EVERYONE WHO REGISTERED WILL RECEIVE A VIRTUAL LINK VIA EMAIL ONE HOUR BEFORE THE EVENT BEGINS.

PLEASE CHECK YOUR SPAM/JUNK FOLDER FOR THE EMAIL.


AGENDA:

10:00 AM-10:15 AM - Welcome and Introductions

10:15 AM-10:35 AM - Research Updates

10:35 AM-11:05 AM - Q&A

11:05 AM-11:15 AM - Presentation

11:15 AM-12:00 PM - Break Out Rooms

  • Room #1 Low Vision - Functional Blindness. We are navigating life’s maze without relying on sight.

  • Room #2  Total Blindness - Light Perception. Seeing the essence of existence in shades of light.

  • Room #3 Blindness and More | Where blindness is just the beginning of a unique journey.

12:00 PM-12:15 PM - Break

12:15 PM-1:00 PM - Guest Speaker - Heather Hutchison

From Avoidance to Acceptance: Nurturing Healthy Identities with Blindness

Heather Shares her journey from despair to finding acceptance and hope, and practical tips she’s learned along the way to help others get there.

1:00 PM - Closing Remarks

1:15 PM - PRRL Lab Tour


Planning to bring your children to the in-person event? Don't worry! We'll have volunteers available to lead children in fun and educational activities, allowing adults to fully engage in the conference sessions.

If you have any questions, contact Luisa Recchia at lrecchia@pediatricrrf.org.

We hope you can join us!

Earlier Event: August 15
2023 Hope For Vision Campaign
Later Event: February 29
Rare Disease Day Celebration 2024