Our History

 
 
 

The Pediatric Retinal Research Foundation (PRRF) is built on a foundation of 20 years of outstanding research outcomes of the Vision Research-ROPARD Foundation (“VRRF”).  

Founded in 1990 by a concerned group of physicians and volunteers, ROPARD was the first organization in the country dedicated to eliminating the problems of low vision and blindness in children caused by premature birth and other retinal diseases.

Our work over the past 20 years has helped substantially reduce blindness in premature infants.  We have funded research at Oakland University’s Eye Research Institute, the Mayo Clinic and Johns Hopkins University.  Work funded to date includes:

  • Research that has identified a genetic link between premature birth and retinal detachment of retinopathy of prematurity

  • The first international internet photographic screening trial for ROP to facilitate physician education and improve patient care.

Our mission is to support the community of families impacted by blinding pediatric retinal diseases and champion the quest for cures by funding relevant research to understand, treat and prevent pediatric retinal diseases including retinopathy of prematurity ROP, persistent fetal vasculature syndrome (PFVS), congenital X-linked retinoschisis (CXLRS), Coats disease, Norrie disease, familial exudative vitreoretinopathy (FEVR), and others.

Expanding lab facilities, exploring new therapeutic interventions, and further genetic research continue to be our primary research objectives. The PRRF’s accomplishments are made possible by the continuing support of responsive and generous individuals.

While the work we do is serious, there is much joy and fulfillment in impacting the lives of children and their families.  There is much work to be done as we seek cures for pediatric retinal diseases.  

You can make a difference! Become a member of our volunteer community or make a contribution which will be used to support the highest levels of clinically relevant research.

We are excited to embark on the journey ahead and delighted to have you join us!

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