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The Loneliness of an Orphan Disease Diagnosis - FAC Workshop

Join Lisa Lovasco as she talks about her experience as a parent navigating her daughter's FEVR diagnosis. She started with feelings of loneliness and despair then searched for community and hope through support groups and advocacy initiatives. There will be time for Q&A after the presentation.

Read her latest article on the PRRF website here.

Register for the workshop here.