A collection of personal stories, articles, and news from the PRRF community.
Dr. Al-Shabrawey is an expert on the study of diabetic retinopathy, a major cause of blindness worldwide, and has published more than 65 refereed articles on the disease in the past 20 years. His research funding since 2007 has included major grants from the National Eye Institute and the American Heart Association, and he currently possesses an NIH R01 grant that extends to 2024.
Read MoreWhen Chuck’s third child, Collin, sat too close to the TV, he and his wife thought that was merely unusual. The day after Christmas, when Collin was around 5 years old, the family learned that he had congenital X-Linked retinoschisis, splitting of the retinal layers, and there was no treatment and no cure. It was predicted that Collin would eventually be blind.
Read MoreNate loves music. he began to take piano lessons when he was 5 years old. He studies the solfége method of musical training period with a great 'ear' for music, he has no problem reproducing the sounds that his teacher plays for him and was able to reproduce on the piano the classic 'Lightly Row' after he heard it at a concert. A greater challenge is using the proper fingering to play the piano, but he has been practicing and is able to apply that skill when he is learning Braille.
Read MoreMy husband Rob and I were absolutely thrilled to welcome our third baby girl Rachael into our family. When she was 5 weeks old, we noticed she didn't respond like her older sisters, Sophie, 5 and Isla, 3, when they were the same age. At 12 weeks old we took her to an ophthalmologist where we were told she was legally blind. Our world came crashing down. She was diagnosed with Familial Exudative Vitreoretinopathy (FEVR).
Read MoreBoth of our daughters have been diagnosed with FEVR. Therefore, you can understand why this foundation is dear to our hearts. We appreciated all of your hard work and are hopeful for a cure in the future.
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